The road to Allergic Contact Dermatitis
Have you had a recurrent rash or maybe had Eczema since you were a young child? Maybe you’ve used topical steroid creams for itch and rash for as long as you can remember, but it’s “ok” because it keeps your symptoms at bay. Maybe you even saw dermatologist after dermatologist for your rash (like I did before a proper diagnosis), but it’s just “eczema,” so it’s no cause for concern. It could actually be Allergic Contact Dermatitis.
About 16 years ago (although I think it might have been way back in my teen years), I began to notice patches on my eyelids and what I thought was just “scratchy dead skin” on my hands and knees. These patches on my eyelids would thicken and get crusty and itchy, and then the skin would go through a terrible healing process.
To me, it looked like I had packed on the eyeshadow heavy that day. I sought out a dermatologist who told me it was most likely nail polish remover or maybe the eyeshadow I was using. Change brands was given as a suggestion. About a year later, I welcomed my second son into our family, and my itchy eyelids became much worse.
Dermatologist Visits with no explanation
I saw another dermatologist hoping for an explanation. Steroid creams were prescribed. Later that year, without relief and in a lot of misery, I went to my asthma/allergy doctor out of frustration. He felt confident what I was struggling with wasn’t in his field, and luckily he sent me to the local “patch test guru,” as he called him. I thought fantastic! Answer to all my problems.
My Personal Journey
In 2006, after the long, tedious chemical patch testing process, I was diagnosed with three contact dermatitis allergens. The words Formaldehyde, Fragrance, and Gold allergies entered my world. My dermatologist handed me a simple paper with some crazy words on it. Avoid these ingredients, he said, and you’ll be much better. I had so many questions. How could Formaldehyde be in products I was using? I only use high-quality skincare and salon-quality hair care. Fragrances, what does that mean? Is it just avoiding wearing perfume? How can I be allergic to Gold? I don’t even wear gold very often. Questions, I learned, weren’t really something that his office answered a lot of at the time.
The dermatologist’s office gave me some smallish-sized samples of products by an allergy-free product company. To me, a lover of all things PERSONAL CARE PRODUCTS, I thought MY life was over. My hair felt coarse, dingy, lifeless. Makeup – what would I do without makeup? OVER.
This was before the internet had really taken off. There wasn’t a lot of information out there readily available at my fingertips. SkinSafe, CAMP lists were not available to me. Learn to read ingredients! my patch test dermatologist told me. Ugh. Learn I did, but I really didn’t have a full idea of what I was trying to avoid at the time.
What is Patch Testing anyway?
First, what patch testing isn’t. Patch Testing is NOT skin prick testing, which an allergist does. I’ve had prick testing as well, and this is not that. Prick Testing is done on your back and finishes in a single visit. It is a test for your body’s histamine reaction to a substance placed just underneath your skin by pricking it open. Prick testing, while not PAINFUL, is really uncomfortable. This type of reaction is called Type I Hypersensitivity. Type I allergies are reactions related to histamine in your body. I talk about the different types of allergies/hypersensitivities in my blog post What is ACD? You can also watch this short YouTube video about Type IV hypersensitivity.
Ok, so now that we know what patch testing isn’t, what exactly is a patch test.
Type IV allergic reactions are not caused by histamine like Type I allergies. Type IV allergies are a cell-mediated response. This response involves the interaction of T-cells in your body. The reaction you see on your skin is caused by helper T cells recognize an antigen (ingredient) as a foreign invader. These T cells then set out to destroy these foreign invaders on contact. This can present with damaged tissues and inflammation. Type IV hypersensitivities can be resolved with avoidance of the ingredient your body has deemed an invader.
It can all sound pretty confusing, but it’s basically a case of identity theft! Your body has decided that an ingredient safe for most is not safe for you. This can happen in several ways, but generally, it’s an ingredient you’ve used daily for years, and the repeated exposure has now set you up for Allergic Contact Dermatitis. It’s why we should be cautious with ingredients patch test dermatologists know can be the most irritating to the skin as that’s the first step to becoming sensitized.
Variety of Patches
Patch tests don’t use needles like a prick test. Instead, allergens and individual personal care products are applied to patches on your back. During a patch test, your skin may be exposed to up to several hundred extracts of substances that can cause contact dermatitis. These can include latex, ingredients in medications, fragrances, common personal care preservatives, metals, resins, and common workplace-related allergens.
Patients wear these patches on their back for 48 hours. You must avoid anything that can cause you to sweat and no bathing/showering during this time. You return to your patch test dermatologist’s office to have them removed. Your patch test derm will mark your back like a map when they remove your patches. Best to have a family member take a photo of your back from many angles with clear pictures. This will help you in the future. You will then leave and return in another 48 hours for a final read of your patches.
Patch Test Pro Tips
• Bring any products you use daily with you to your initial appointment. Also, take pictures of reactions you may have to share with your dermatologist. They can only help you if they know the full context of what you are dealing with.
• Take clear pictures of your back “map” on day 3. These pictures will be a guide for you in the coming days. Any red/irritated spots showing on Day 3 are considered irritants. In my experience, avoid irritants in addition to true allergens. Irritants can often turn into full-blown allergens in the years to follow with recurrent use.
• Request a detailed “map” of what allergen is placed in each location on your back to associate it with your photos. You, after all, can only be your best advocate if you have all the information presented to you. These are YOUR medical records. Politely ask for all of the detailed sheets related to your patch test, including dr notes. I did this more than 10 years after my initial test and was stunned to find all of my allergens were not disclosed to me.
• Be sure to have a family member take a back picture every day of your “map” for up to 2 weeks after your final read. It is not uncommon to have very delayed reactions. If you notice one, note it and contact your patch test dermatologist. Some patch areas where you are extremely allergic to the allergen can linger for weeks and even months at times. This is normal.
• Finally, find a patch test dermatologist who has the capability to do thorough patch testing. If you are only given 20-30 patch tests (or a TRU Test), you may truly be missing the full picture of your allergic contact dermatitis allergens. Do it once and do it right!
You may know someone who is in need of this specialized patch testing; maybe it’s you! In Louisville, Kentucky, where I am, my fantastic patch test dermatologist is Dr. Todd Rickett at Forefront Dermatology. You can find a local-to-you-guru at www.contactderm.org
Good Luck! I am in your corner!